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Hemophilia Foundation of Illinois

332 S. Michigan Ave., #1135
Chicago, IL 60604
312-427-1495
312-427-1602 Fax
www.hemophiliaillinois.org

Mission
The Hemophilia Foundation of Illinois exists to improve the quality of life for people affected by inherited bleeding disorders.

Hemophilia Facts and Statistics
Over 18,000 people have hemophilia.

Hemophilia affects primarily men; very few women have hemophilia.

A single clotting treatment for a person with hemophilia can range from $1,500 to $3,000

Annual treatments routinely cost more than $200,000

Von Williebrand Disease (vDW) Facts and Statistics
vWD affects up to 2.5 million women

91% of women have never heard of vWD and 64% think a bleeding disorder is a medical condition in which the blood is too thin.

Health Tips
Women are the carriers of the defective gene that causes hemophilia. A woman is definitely a hemophilia carrier if she is:

• the biological daughter of a man with hemophilia;
• the biological mother of more than one son with hemophilia;
• the biological mother of one hemophilic son who has at least one other blood relative with hemophilia.

A woman may or may not be a hemophilia carrier if she is:

• the biological mother of one son with hemophilia;
• the sister of a male with hemophilia;
• an aunt, cousin or niece of an affected male related through maternal ties;
• the biological grandmother of one grandson with hemophilia.

Von Williebrand Disease is the most common inherited bleeding disorder

vWD can be inherited by either parent or be caused by a spontaneous genetic mutation.

Distinctive “red flag” symptoms of vWD include:

• Heavy menstrual bleeding
• Frequent nosebleeds
• Easy bruising
• Bleeding gums
• Heavy and/or prolonged bleeding from dental work and surgery
• Post-partum hemorrhaging

Fundraising & Administrative Percentage
19.4%